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Scoliosis Stories

HARRY'S STORY
Submitted January 6, 2005; Updated May 20, 2006; Update August 22, 2006

Hello I am 9 years old. I have congenital scoliosis and have had 10 back surgeries.

I have a curve somewhere in the high 40's or low 50's. I used to have two harrington rods on either side of my spine.

A few months ago I developed pustuals along my scar I found out I needed ANOTHER surgery the day before I had surgery they had to take the rods out. We are now wondering what to do.

UPDATE: May 20, 2006
I went back to the doctor and I found out that I will need to have a final fusion, because my spine is fused. I am scared about my surgery. I will probably be recuperating for a few months. I will keep on updating up until and after my surgery.

UPDATE: August 12, 2006
I had a posterior anterior spinal fusion on june 21st. I was intabated for 4 days. after that I was on a mask that blew air into my lungs. I was in the icu for about 3 weeks. I needed to do a lot of different things to help my breathing. I was in the hospital for a total of about 4 weeks. when I went back to my doctor for my post op appt. he told us that I was fusing well.

I now have three rods. The only problem with the surgery is that it is hard for me to stand up striaght right. My x-rays are fine and I will be updating when I next see my doctor.

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